Myasthenia Gravis (MG) is a little known, autoimmune, neuromuscular disorder that affects around one in every 1,000 people.
For our members and families, this is like winning the lottery. This money will allow us to provide additional care and specialised support, which is not currently available on the NHS.
Alasdair Nimmo, CEO
The condition has fluctuating symptoms that are distressing for those affected and their families – and more specialist care is desperately needed.
The age of onset and symptoms of the disorder are so variable that GPs find diagnosing MG difficult. This project aims to raise awareness of the disease among the medical profession.
In addition to providing education, the scheme recruits and sponsors specialist nurses to provide ongoing support for affected families and raise standards of healthcare for MG in the UK.
GSK is funding this programme for a period of three years.