- Related tags:
- Patients and consumers
Tuesday 10th May 2016 marks World Lupus Day and patient organisations around the world will be supporting the World Lupus Federation’s ‘Lupus Knows No Boundaries’ campaign.
There are no boundaries when it comes to the impact of lupus; it can affect any part of the body in any way at any time, often with unpredictable and life-changing results. However, insights from our global survey of more than 16,000 people reveal that while there have been advances in the diagnosis and management of lupus from a scientific perspective, public awareness remains low and there are various stigmas associated with the disease, which could contribute to the feelings of loneliness and isolation that are often experienced by those living with lupus.
How much do you know about Lupus? Read our infographic to find out more:
Living with lupus – the patient perspective
Imagine having to plan each day according to units of your energy – making a choice between washing your hair and washing the dishes, as you haven’t got enough energy to do both. This is just one of the daily challenges that living with Lupus can bring. Here, Beth tells us her story about coping with this chronic condition.