• Home
• Responsibility
• Commitment to transparency
• Patient group funding
• Pan European groups

Patient group funding

European Organisation for Rare Diseases (Eurordis)

Eurordis is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.

Eurordis’ mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.

We have supported this organisation since 2006.

During 2008:

• We gave an unrestricted grant €10,000 to become a member of the round table of companies. This was created to establish a long-term educational relationship between Eurordis and companies that have an interest in orphan drug development.
•  In addition we gave an educational grant of €5000 to help support the Eurordis annual membership meeting held in Copenhagen in May. 

During 2007:

• We gave an unrestricted grant of €10,000 to become a member of the round table of companies. This was created to establish a long-term educational relationship between Eurordis and companies that have an interest in orphan drug development.  
•  In addition we gave an educational grant of €1000 to help support the Eurordis annual membership meeting. 

Our funding represents around 0.4% of their income overall.

In 2006:

• We gave an unrestricted grant of €10,000 to become a member of the round table of companies. This was created to establish a long-term educational relationship between Euordis and companies that have an interest in orphan drug development.

Our funding represents less than 1% of their income overall.