Patient group funding

Institute for Neuroacanthocytosis

This group is the international centre for supporting patients and promoting clinical and basic research into:

McLeod Syndrome
Chorea acanthocytosis
Huntington's disease like-2
Pantothenate kinase-associated neurodegeneration

These diseases are so rare that only a virtual centre of excellence can bring together NA patients, and their families and friends, with clinicians and basic research scientists who seek to alleviate the consequences of these very rare and severe movement disorder diseases that seriously disable people around the world.

We have supported this organisation since 2008.

During 2010:

We gave an unrestricted financial grant of £1275.13 to support them with the lay out and production of booklets containing the programme of Joint International Symposium on Neurocanthocytosis and Neurodegeneration with Brain Accumulation - 1-2 October 2010, Bethesda, Maryland, USA.

Our support represents 4.4% of their overall income.

During 2008:

We gave an unrestricted grant of £ 1118,2 to support them with the lay out and production of booklets containing the programme of the Fourth International Symposium on Neuroacanthocytosis, 1-2 July 2008, London and Oxford and support them with travel to the conference.

Our funding represents 1% of their overall income.

In the community

Find out about our work in the community