Patient group funding
The Neurofibromatosis Association
The Neurofibromatosis Association was founded in 1982 by Clare Webb and Trish Green.
The Neurofibromatosis Association has six main aims:
- provide help, support and advice to those affected by either form of Neurofibromatosis, their families and the professionals working with them. To do this they employ a team of hospital based professional Neurofibromatosis Specialist Advisors around the UK.
- provide relevant, up to date information on both forms of Neurofibromatosis for professionals, families and individuals.
- fund research into both types of Neurofibromatosis.
- provide activity holidays and breaks for children and adults with either form of Neurofibromatosis.
- encourage the establishment of local groups and volunteers throughout the UK.
- raise awareness of the Neurofibromatoses amongst the general public through fundraising activities.
We are a new supporter of this organisation in 2008.
During 2008:
- We gave an unrestricted core funding grant of £375 to support The Neurofibromatosis Association for the benefit of patients, following a charity team building event at the 2008 Medical Conference.
Our support represents 0.11% of their overall funding.
