{"magazineArticle":{"contentWrapper":{"hideReadArticle":false,"headline":"78% of gynaecologic cancer patients experience challenges accessing the treatment they need, new survey shows","datePublished":"2024-11-12T00:00:00Z","datePublishedFormatted":"12 November 2024","parentHref":{"text":"Behind the Science magazine","href":"/en-gb/behind-the-science-magazine/","openInNewWindowText":null},"nextArticle":{"text":"Next article","href":"/en-gb/behind-the-science-magazine/meningitis-cases-rebound-risks-symptoms/","openInNewWindowText":null},"carouselTitle":"","readTimeMins":3,"captions":{"listenToArticle":"Listen to this article","readTime":"min read time","relatedTags":"Related tags"},"heroImage":{"src":"/media/1vkk34a5/gettyimages-921583810.jpg?format=webp&v=1dbc64fe667a5f0","alt":"Patient looks away from camera","darkModeSrc":"/media/1vkk34a5/gettyimages-921583810.jpg?format=webp&quality=50&v=1dbc64fe667a5f0"},"author":null,"articleType":"News","videoType":null,"topics":["Oncology","Inclusion"],"introText":""},"components":[{"type":"rich-text","text":"

There are significant gaps in support for people living with gynaecologic cancers, findings from a new GSK-sponsored survey show.

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The multinational poll – which asked 818 patients and survivors from 10 different countries about their unique experiences with endometrial (or uterine), ovarian, cervical, vaginal and vulvar cancer – found several physical and emotional barriers prevented individuals from accessing the care they need.

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78% of the gynaecologic cancer patients surveyed said that they experienced challenges in accessing treatment they need, with appointment availability (36%) reported to be the main issue.

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Nearly 3 in 4 patients (72%) also had challenges that prevented them from attending their appointments, with 1 in 4 citing day-to-day responsibilities (25%), difficulty managing the required paperwork associated with treatments and/or appointments (24%), or not feeling well enough to leave home (23%) among the most common barriers.

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“The ability to follow treatment regimens and access care in a timely way is crucial for patients being treated for cancer,” says Nina Mojas, Senior Vice President of Oncology Global Product Strategy at GSK.

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“Yet many patients worldwide encounter serious barriers to care following diagnosis.

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“This survey – commissioned as part of our new initiative Your Cancer Is Our Challenge – is shedding a light on how prevalent these barriers can be, and why, for patients with gynaecologic cancers around the world.”

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Participants were also asked if they received emotional support from family and friends. 71% said they received a great deal or a lot of emotional support. Just over half additionally received a great deal or a lot of help to get to appointments (57%) and with day-to-day responsibilities (56%).

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“When I was diagnosed with stage 3 ovarian cancer, my life completely changed in an instant,” says Jennifer Garam, an ovarian cancer survivor and writer from New York.

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“I had to learn very quickly how to adjust to my new reality.

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“A cancer diagnosis goes beyond the physical ramifications — I also had to navigate the mental and emotional challenges that come with it, too. In addition to my incredible healthcare team, my strong support system of friends, family and my community was crucial in helping me get through treatment.”

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In patients under 30, more than half (55%) reported their mental health has been negatively impacted, while 30% of all patients surveyed said they felt they were to “blame” for their diagnosis.

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The survey, conducted by The Harris Poll, also aimed to gauge the level of knowledge patients felt they had about gynaecologic cancers and the treatment options available to them.

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While more than 4 in 5 patients (83%) felt their healthcare provider explained treatment options well, many still reported feeling uncertain about what to expect during (41%) or after (36%) treatment.

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89% wanted to know more about the types of genetic testing options available that could inform their cancer treatment, possibly enabling precision medicine plans to be created for them based on their individual characteristics and specific cancers. Among those who had received genetic testing since their diagnosis, the majority wished their healthcare provider gave clearer explanations of the test results (74%). 

","useGreyBackground":false,"fullWidth":false},{"type":"related-read-content","title":"Read related","relatedPage":{"title":"Advanced technology is increasing the chances of improving outcomes for cancer patients","image":{"src":"/media/jpvnc4ma/gsk_lon_09_2023_patient_2_moran_2173.jpg?format=webp&v=1dba2eb9b5cdc10","alt":"people clapping","darkModeSrc":"/media/jpvnc4ma/gsk_lon_09_2023_patient_2_moran_2173.jpg?format=webp&quality=50&v=1dba2eb9b5cdc10"},"link":{"text":"advanced-technology-cancer-care-oncology","href":"/en-gb/behind-the-science-magazine/advanced-technology-cancer-care-oncology/","openInNewWindowText":null},"label":"Behind the Science magazine","authorName":null}},{"type":"rich-text","text":"

“Given the evolving landscape of gynaecologic cancer care, patients might not have all the details they need to understand what to expect or to make informed decisions,” says Dr Amina Ahmed, a gynaecologic oncologist from Illinois.

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“With the prevalence of precision medicine and biomarker-based treatment decisions in cancer care, it’s important for healthcare providers to offer guidance and direct patients to resources to help them understand their options, which are often highly tailored to the individual patient.”

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The survey results mark the start of GSK's multi-year initiative ‘Your Cancer Is Our Challenge’, which aims to uncover and help to address barriers associated with gynaecologic cancer, one of GSK’s three focused areas of oncology research, alongside immunology and haematology.

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This work includes investigations into treatments that target specific biomarkers – characteristics of the body or a disease that can be measured to provide information about a patient’s biological condition or specific disease.

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By understanding the genetic makeup of tumours, scientists can identify potential vulnerabilities and develop therapies that address the underlying mechanisms of the disease.

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“At GSK, we are committed to addressing the unmet needs of people with gynaecologic cancers so patients can live better today and thrive well beyond cancer tomorrow,” Mojas concludes.

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“Through ‘Your Cancer Is Our Challenge’, we are raising awareness of patients’ experiences and then using those real-world insights to help create actionable programming with the goal of helping improve lives of people diagnosed with gynaecologic cancers.”

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shows\",\"keywords\":\"Oncology,Inclusion\",\"articleBody\":\"There are significant gaps in support for people living with gynaecologic cancers, findings from a new GSK-sponsored survey show.The multinational poll \\u2013 which asked 818 patients and survivors from 10 different countries about their unique experiences with endometrial (or uterine), ovarian, cervical, vaginal and vulvar cancer \\u2013 found several physical and emotional barriers prevented individuals from accessing the care they need.78% of the gynaecologic cancer patients surveyed said that they experienced challenges in accessing treatment they need, with appointment availability (36%) reported to be the main issue.Nearly 3 in 4 patients (72%) also had challenges that prevented them from attending their appointments, with 1 in 4 citing day-to-day responsibilities (25%), difficulty managing the required paperwork associated with treatments and/or appointments (24%), or not feeling well enough to leave home (23%) among the most common barriers.\\u201CThe ability to follow treatment regimens and access care in a timely way is crucial for patients being treated for cancer,\\u201D says Nina Mojas, Senior Vice President of Oncology Global Product Strategy at GSK.\\u201CYet many patients worldwide encounter serious barriers to care following diagnosis.\\u201CThis survey \\u2013 commissioned as part of our new initiative Your Cancer Is Our Challenge \\u2013 is shedding a light on how prevalent these barriers can be, and why, for patients with gynaecologic cancers around the world.\\u201DParticipants were also asked if they received emotional support from family and friends. 71% said they received a great deal or a lot of emotional support. Just over half additionally received a great deal or a lot of help to get to appointments (57%) and with day-to-day responsibilities (56%).\\u201CWhen I was diagnosed with stage 3 ovarian cancer, my life completely changed in an instant,\\u201D says Jennifer Garam, an ovarian cancer survivor and writer from New York.\\u201CI had to learn very quickly how to adjust to my new reality.\\u201CA cancer diagnosis goes beyond the physical ramifications \\u2014 I also had to navigate the mental and emotional challenges that come with it, too. In addition to my incredible healthcare team, my strong support system of friends, family and my community was crucial in helping me get through treatment.\\u201DIn patients under 30, more than half (55%) reported their mental health has been negatively impacted, while 30% of all patients surveyed said they felt they were to \\u201Cblame\\u201D for their diagnosis.The survey, conducted by The Harris Poll, also aimed to gauge the level of knowledge patients felt they had about gynaecologic cancers and the treatment options available to them.While more than 4 in 5 patients (83%) felt their healthcare provider explained treatment options well, many still reported feeling uncertain about what to expect during (41%) or after (36%) treatment.\\u00A089% wanted to know more about the types of genetic testing options available that could inform their cancer treatment, possibly enabling precision medicine plans to be created for them based on their individual characteristics and specific cancers.\\u202FAmong those who had received genetic testing since their diagnosis, the majority wished their healthcare provider gave clearer explanations of the test results (74%).\\u202F\\u201CGiven the evolving landscape of gynaecologic cancer care, patients might not have all the details they need to understand what to expect or to make informed decisions,\\u201D says Dr Amina Ahmed, a gynaecologic oncologist from Illinois.\\u201CWith the prevalence of precision medicine and biomarker-based treatment decisions in cancer care, it\\u2019s important for healthcare providers to offer guidance and direct patients to resources to help them understand their options, which are often highly tailored to the individual patient.\\u201DThe survey results mark the start of GSK\\u0027s multi-year initiative \\u2018Your Cancer Is Our Challenge\\u2019, which aims to uncover and help to address barriers associated with gynaecologic cancer, one of GSK\\u2019s three focused areas of oncology research, alongside immunology and haematology.This work includes investigations into treatments that target specific biomarkers \\u2013 characteristics of the body or a disease that can be measured to provide information about a patient\\u2019s biological condition or specific disease.By understanding the genetic makeup of tumours, scientists can identify potential vulnerabilities and develop therapies that address the underlying mechanisms of the disease.\\u201CAt GSK, we are committed to addressing the unmet needs of people with gynaecologic cancers so patients can live better today and thrive well beyond cancer tomorrow,\\u201D Mojas concludes.\\u201CThrough \\u2018Your Cancer Is Our Challenge\\u2019, we are raising awareness of patients\\u2019 experiences and then using those real-world insights to help create actionable programming with the goal of helping improve lives of people diagnosed with gynaecologic cancers.\\u201D\",\"articleSection\":\"Behind the Science magazine - News\"}"]}}