Then there are your long term fears. I don’t spend all my time thinking about the future and all the what-ifs, it’s not a healthy way to live. There’s a balance to be met of owning your situation and not hiding from it, but also not letting it consume and paralyse you.
Living with a chronic illness that has no cure is scary, and of course I have fears about my own life expectancy, fears of the unknown and of how an illness like this may develop. But you have to find a place to put that away and live for the moment, live for the now.
Sometimes you have to give yourself permission to have a good cry or moan. But then you have to shake it off, shake off the self-pity and look at the sunrise.
When things are good you have to try and appreciate them because inevitably darker times will come, and when things are dark it’s important to hold on and remain positive, because they won’t stay dark forever.